French Word of the Day: disparu (diss-par-ew)- gone, disappeared
For those of you who think the title should be “Wherefore art thou” like the line from Shakespeare’s Romeo & Juliet, you’re incorrect. Wherefore means why. It’s a common misconception that I’m breaking you all of now. Juliet isn’t calling out to Romeo, she’s asking the universe why he’s a Montague, son of her foresworn enemy.
And now, we speak French.
I have no idea where time has gone. I was leaving for Paris, and then all of the sudden it was the week before Thanksgiving. I still haven’t put up 8 million posts detailing every millisecond of my trip!
It was quite the trip. I plan on stretching out blogging about it on here from now until Christmas. (At my current rate of posting, that equals about one entry.)
I took so many pictures that my phone has been yelling at me. “Yo Meghan, when you gonna take these things off? You don’t have any more space in the cloud.”
Why do clouds run out of space? I thought it was impossible to fill them.
But Paris comes later. To tide you over:
I went to my doctor today, and she let me know that my kidney/ lupus levels are pretty much in the normal person range. I’m pretty excited. For today, that will trump Paris.
But just for today.
French Word of the Day: MERCIIIIIIIIIIIIIII!!! (mare-sea)- thank you (excitedly written)
Thank you so much to everyone who donated to the Lupus Walk/ was a part of the Lupus Walk. You guys, we raised a LOT of money!
I was so touched by you all coming. Really, it meant a lot. They forgot my speech, but I would have definitely thanked you all in it. You rock, and couldn’t do what I do without you.
Tank supports Lupus. (Courtesy of Aunt Kathy)
It’s been an exhausting few weeks. Now that everything’s all wrapped up, I’m on my way to Paris! I’ve been pretty much worthless with excitement all day today.
Pain au chocolat here I come!
French Word of the Day: rémission (ray-miss-ee-own)- remission
The test results for the chemotherapy and in, and they are looking fabulous! I would have been just a touch angry if the doctor had come back and said, “Well, that whole 6 months of chemo thing was a bust.” Luckily, her words were, “Your levels are almost to normal! (Except for some abnormalities due to your disease.)”
Please note that this does not mean I’m cured. I’ve had to specify that a lot. I think every time I speak to someone about it I confuse people. To save myself some time, I’m going to write the conversation I’ve been having with everyone.
Person: Oh my God, your results are good! So you’re completely cured!!!!
Me: Um, not quite. It’s under control. But not fully. My kidneys are no longer being destroyed.
Person: So you’re not better? Do you have to go on chemo again?
Me: No, I’m better!
Person: But you just said you weren’t.
Me: I’m better than before. My body is no longer attacking itself.
Person: So you’re cured!!
Me: You can’t cure lupus. It only goes into remission.
Person: So you’re in remission!
Me: Not yet. I’m going to be taking a special medicine for at least the next 2 or three years to control everything.
Person: But I thought you were better? I’m so confused.
Me: Tell me about it. I’ve been confused for the last 8 years.
In celebration (and because my hair has grown back in the last two months), I got a haircut. Check it:
I might have gotten a new photo app that I’m playing around with. (Just for the words. The bad lighting and poor photo quality are all my own.) My hair might also be slightly frizzy.
Days Until My Next Parisian Pain Au Chocolat: 16
French Word(s) of the Day: jamais encore (jah-may on-core)- never again
That chemo thing I’ve been doing is finally done. Most of you probably know this because I’ve been posting it on every social media outlet available to me.
My mom and Alyssa came over to my apartment afterwards. Alyssa wrapped me in a huge “Congratulations!” banner, which went very well with the Disney Princess tiara and balloon she brought. I looked appropriately festive.
You guys should appreciate that I’m putting aside my vanity to properly illustrate how to wear a Congrats banner.
They all warned me that the last chemo session would be the worst because it’s cumulative, and they were right. Rocio asked me if I was going to work the next day, and I said, “I’ve been up for 20 minutes and I’ve already thrown up twice, so probably not.”
I spent the rest of weekend lying very still on the couch finishing the second season of Scandal (which lives up to its name). Christine, being a proper best friend, came over to hang out with me for a little bit and helped reintegrate me to the world of solid foods.
But things have begun to go back to normal. My friends all took me out last night for a post chemo shot (of alcohol… no more medicine, please). It was a night of merriment and I finally got to dance without feeling sick.
What’s up next? I’ll start another medicine shortly for maintenance, and I fully plan on going into remission directly afterwards. (Pretty much the second after I start it.)
French Word of the Day: l’homosexualité (lome-oh sex-ewe-al-it-eh)- homosexuality
I had never been to a Gay Pride Parade, and I figured it was about time after 25 years. If you don’t love color, you should probably skip this post. My friends and I each took a different color of the rainbow:
Rocio took this picture, but she was a lovely shade of pink. (Clothing-wise, not skin-wise.)
The Pride Parade is easily one of the happiest parades I’ve ever been to. Everyone was laughing, dancing and screaming- it was like Disney World with less expensive merchandise.
I’ve never seen so many things handed out in a single parade. By the end, we had no less than 25 of each object: temporary tattoos, bracelets, flyers, pins, frisbees, flags… Whoever has to clean up the streets is having fun right now.
I took quite a few pictures. Unfortunately, I’m short, so half the pictures are full of the hands, arms and heads of everyone in front of me. Okay, now full speedo ahead!
Elphba and Glinda!
French Word of the Day: aïe (eye)- ow
I’ve gotten my final menopause shot! I’m in the home stretch here.
My back’s been in pain from it for about the past hour and a half. Whoever said “complaining never helps” is WRONG, because I’ve been lying on the couch saying, “Ow, ow, ow, ow, ow” without stop, and I’m feeling much better now. (It’s also possible my Tylenol finally kicked in, but that’s a minor detail.)
After my rough chemo session, I did develop two bruises on my arms.
Check out these bad boys.
I’ve spent most of my week figuring out how to both cover my arms completely and dress for the warm weather. They’re opposing goals, and the warm weather has been winning.
Other than the bruise and the vomiting, I have been getting better. It’s a slower process this time, but I still managed to have pancakes on Sunday. I mean, they were whole wheat, vegan and healthy, but I put syrup on them. That counts.
I will start writing more soon, but my computer’s acting up. It keeps turning off and then insisting that’s it’s December 31st, 2000 when it finally turns back on. This is probably indicative of some kind of expense malfunction. Or possibly my computer is a time machine…
French Word of the Day: cinq (sank)- five (I realize I’ve written it in Spanish everywhere else.)
Well folks, we’ve reached numero cinco. My veins weren’t cooperating, so I got stuck twice.
You can kind of see the bruise in this photo:
Relaxin’ in my chair
I was trying to get a decent photo for the blog while sitting by myself. I tried to only take pictures when no one was looking, which turned out to be difficult in a room full of people. I’m sure it’s not everyday the nurses get to see a patient taking selfies while receiving an IV.
This chemo was the least fun. (To be fair, no chemo session is “fun.” They’re rated on a scale from “blah” to “Ughhhhhhhhhhhhhhhhhhhhh.”) I passed out on the coach when I got home. My mom- being the fabulous woman she is- did my laundry while I was sleeping.
This morning, I woke up several times to get sick. I decided my fellow commuters might not appreciate me throwing up on them, and stayed home from work.
5,000 saltines later, I’m feeling better.
Only one more to session to go!