French Word of the Day: le rein (luh ren)- kidney

I don’t generally like talking about my illness when I’m doing poorly.  No one wants to think about it when they’re not doing well.  I don’t really want to talk about it, but I know everyone is curious, so I’m writing blog posts instead.  That way I can just send people the link and we don’t have to discuss it.

According to my reader stats, a ton of people checked this page yesterday, so I have a feeling you were all expecting this.

My lupus is doing what it does best, attacking things and causing general mayhem.  Right now, it’s focusing on my kidneys.  They’re currently doing whatever it is that kidneys do properly (obviously, biology was my best subject in school), but some of my levels indicate that there is something wrong with them. I had a biopsy Friday to make sure the cells aren’t damaged.

I’m not quite sure who said, “Your organ is damaged?  Let’s take a piece of it out! That sounds not at all crazy or detrimental to your health!”  But I’m an English major.

They took a really, really long needle that is longer than my torso (I made them show it to me afterwards… how they didn’t go right through me, I’ll never know), and stuck it in my back.

I literally got stabbed in the back by doctors.

Obviously, food is always my biggest focus.  I wasn’t allowed to eat for 6 hours before the surgery, so my first question when I was finished was “When do I get to eat again?” Personally, I think the recovery room should have had a buffet table.

The hospital took their sweet time in feeding me, but my parents snuck me fruit and pain au chocolat.

That’s why I take them places.

I should have taken them up on their offer to get fast food for me, because this is what qualified as food at the hospital:

Cream of Goop

I believe this paste is typically used in childrens’ art projects.

Everything went well for the biopsy.  I did have a little internal bleeding, but nothing that’s going to require surgery.  I’m not allowed to play any contact sports for the next two weeks.  (There goes my successful rugby career!)

My doctor also said I’m not allowed to “jump dance”.  I will find a way to dance without jumping or moving my torso… just wait and see.

What’s Next: They’re not certain, but probably 6 months of IV chemotherapy.  I’ll keep you updated.

Thanks to everyone who visited me and brought me food and flowers!  Much appreciated 🙂

Pain Au Chocolat Count: 2- one from my parents, one from Allison and Paul